Erika's Walk

Imagine being condemned to a lifetime of struggles. Little girls robbed of their ability to speak, walk, crawl, or even use their hands. Some, like Erika, have a feeding tube because they can't swallow. They can have hundreds of seizures daily. They depend on their loved ones every second of the day. These little girls suffer from Rett Syndrome.

What is Rett Syndrome?

Rett Syndrome is a devastating neurological disorder seen exclusively in young girls. In scientific circles, it is referred to as "an orphan disorder" because it occurs in one out of ten thousand female births and consequently gets little notice and very little funding. More than half of these young girls will live in wheelchairs the rest of their lives.

Why Help?

In 2007, Rett Syndrome was successfully reversed in mice, but we desperately needed funds to be raised to help see the damage of Rett Syndrome reversed in our little girls. To many, there is no greater blessing than to be able to enjoy the simple pleasures of everyday life. Erika's fate and the fate of all these little girls with this dreaded disease is unacceptable! Rett Syndrome is a life sentence that imprisons our little girls and they deserve to have the chance to live the fullest lives possible. 

The Fundraiser: 

The 9th annual "Erika's Walk" will be Saturday, June 16th, 2018. All participants will meet in the Franklin Memorial United Methodist Church parking lot. It will be from 9:00am - 12:00 pm (roving start). The walk will take place on the scenic Sheepskin Trail. Refreshments will be available on the trail. The donation price includes a T-Shirt and spaghetti dinner.

Adults: $25.00 

Children 16 and Under: $5.00

Non-walkers can purchase a spaghetti dinner (all you can eat) for $8.00 and children eat free.

Please fill out a registration form. They can be found at Doctor Ellis' office in Connellsville. You can also call 724-277-8044 or 724-880-6691.